My son, Hendrix was born in September of 2019. At one month old he was diagnosed with the rare heart disease pulmonary hypertension. At the time we didn’t know what to make of it. Flew from Sioux Falls, SD to Aurora, CO 6 hours after an echocardiogram and diagnosis. Two brand new parents, completely confused about what is going on except that I have to board a plane to fly my one-month-old son down for treatment. We were in Colorado for one month. Over this time, many echos and tests are done to discover why my son has this disease. Only to come up empty. Hendrix came on one medication and oxygen to “treat” this untreatable disease. He seemed to be doing well and at 9 months old we were quickly admitted back down in Colorado. This time so much worse. He was in right heart failure and going downhill fast. With the help of such amazing doctors and the snuggly WubbaNub by his side. He came home 3 weeks later and we begin to see amazing progress. Many more medications added and still on 24/7 oxygen now at 16 months old. He is sure to show off his WubbaNub at every echocardiogram. Hendrix is a thriving and smart little boy. Nothing holds him back! Not even an irritating oxygen cord that gets stuck on every corner.