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Congenital Heart Disease WubbaNub Heart Warrior Stories

Jordan G.

Our son, Oliver, was born with Pulmonary Atresia with Intact Ventricular Septum…Read more


Caitlyn M.

Leilynn was born with tetralogy of fallot, pulmonary stinous, MACPAS and restricted VSD…Read more


Kayla M.

Harper was born with CHD & Heterotaxy syndromes duke university hospital on February 12th 2020!…Read more


Lindsay H.

I got pregnant when I was 18 years old. Little did I know my life was about to change for ever! My daughter was diagnosed with CHD, shortly after she was born…Read more


Kitty B.

I am the mother of a 13-year-old Heart Hero named Sam, who has undergone three open-heart surgeries with another in the near future…Read more


Jody B.

Our son was diagnosed at 5 weeks with VSD and had his heart surgery at 16 weeks…Read more


Judi C.

Our son was born at 36 weeks, seemingly healthy!…Read more


Amber R.

In 2019 I found out I was expecting my Third Child but first boy and I was so over the moon ecstatic…Read more


Sarah G.

Titan was born with a rare congenital heart defect called Tetralogy Of Fallot the day after he was born…Read more


Mary F.

This is Bentley he was born on January 13, 2020 with HLHS (hypoplastic left heart syndrome) with MS/AS, mod coarc, PDA, mild ascending aorta hypoplasia…Read more


Shawnee O.

After years of infertility and 3 losses we finally conceived Theodore…Read more


Sharese and Eryka E.

Little Miss Eryka was diagnosed with CHD complications at only 17 weeks gestation…Read more


Kaitlyn H.

We love our wubbanub! It has helped us so much!…Read more


Hudson C.

Heart throb Hudson is the sweetest little guy ever! He will steal your heart, His smiles are so infectious they light up the room!…Read more


Brandon C.

I am Brandon, a father of a heart angel and Vice-President of Remington’s Heart Foundation…Read more


Ashley P.

My son, Alfonse Perrone III was diagnosed with Tetralogy of Fallot when I was 20 weeks pregnant…Read more


Stacey T.

My family loves their WubbaNubs!…Read more


Valente G.

Giovanni is the most amazing 3 month old boy who just learned that his hands can go in his mouth lol…Read more


Desiree H.

My 5 month old son had a successful OHS on 1/8/21 for 3 repairs…Read more


Sabrina L.

Congenital Heart Disease can be isolating, scary, and anxiety inducing. It can also be a connecting and beautiful cause for celebration…Read more


Elizabeth M.

Rykar was born on 10/22/20. I was positive for covid and had waited 13 years for this big day to arrive…Read more


Cynthia B.

Shiloh Faith Bustos was born on October 12, 2020, at Dallas Presbyterian Hospital. The delivery was long and complicated…Read more


Lauren Y.

Our son was born 3 days after our state shut down due to COVID-19…Read more


Caitlin V.

At my 20 week anatomy scan with my first child, we learned we would be welcoming a little girl with a combination of defects called Pentalogy of Cantrell…Read more


Grace S.

Grace Swearinger was born May 19th, 2020…Read more


Haley S.

Our daughter Rowan was prenatally diagnosed with congenital heart disease at around 23 weeks gestation…Read more


Melanie N.

I was admitted to the hospital for 6 weeks prior to the delivery of my twins due to preeclampsia…Read more


Angela R.

I had brain surgery when I was 13 weeks pregnant with our second daughter…Read more


Alicia G.

We are expecting our heart warrior on February 27, 2021…Read more


Liam O.

Hi everyone my name is Liam I am 26 years old I was born with a rare heart defect called a double aortic arch and vascular ring…Read more


Yelena K.

Our beautiful daughter Mila was born with a very rare heart defect…Read more


Linda P.

Luke’s Story

Back in 2017, sixteen weeks into their pregnancy, Linda and Clint Pilkinton heard the news; their baby would be born with Hypoplastic Left Heart Syndrome, a rare congenital defect in which a part of the infant’s heart is underdeveloped or not there at all…Read more


Theodore O.

Theodore was born at 34weeks and was diagnosed with heart defects a week after birth…Read more


Alyssa K.

Jordan was diagnosed with d-TGA while still in her momma’s belly…Read more


Bryar S.

Bryar and his twin sister were born 6 weeks early…Read more


Jillian M.

My daughter Saoirse was born with a condition called heart block…Read more


Laine R.

My Son Clive celebrated is 1 year Anniversary of having Open Heart Surgery in September 2020…Read more


Ashley G.

My daughter Piper was born with Third-degree atrioventricular (AV) block, also referred to as third-degree heart block or complete heart block (CHB)…Read more


Erica F.

Braxton Ace Diaz was born 10/30/2020 and 4 days later was rushed to ER he was crying at 5 am and all of a sudden his cry went off he started grunting so i knew something was wrong then I moved his blanket and his skin was mottled…Read more


Leah P.

Benjamin was essentially born with half a heart (his diagnosis is a double inlet left ventricle)…Read more


Rocio G.

My son Gerald III ( G3) was born in October 2019 with a congenital heart defect known as TAPVR…Read more


Joan T.

My granddaughter Kennedy was born March 9, 2020, with VSD…Read more


Maverick J.

Hello! My name is Maverick, I am just over 1 years old and I was born with several congenital heart defects…Read more


Ashley M.

My son was diagnosed with CHD while I was 22 weeks pregnant with him…Read more


Jennifer A.

When I was just 20 weeks pregnant, I got news most parents fear that my baby had some abnormalities and I would need to go see a specialist…Read more


Maurice W.

Maurice was born with Congenital Heart Disease, he underwent open-heart surgery to correct TAPVR only hours after birth…Read more


Yesenia G.

On April 3, 2020, I gave birth to a beautiful baby boy…Read more


Stormy W.

I was 20weeks pregnant when I found out my son had HLHS. I had to travel 2 hours away from home to a hospital that was equipped for his care!…Read more


Brittney S.

My name is Brittney Salazar and I was pregnant with twin girls- which made my 4th pregnancy with 2 surviving children…Read more


Joyce R.

Our family story has two chapters. One of vintage and one more recent, but both important…Read more


Lynsey B.

Congenital heart disease doesn’t run in our family…Read more


Arica S.

My son, Hendrix was born in September of 2019…Read more


Ashley G.

James RIDGE King: Born October 31, 2020…Read more


Alicia W.

Savannah is an 18-month-old with hypoplastic left heart syndrome, heterotaxy, and cleft lip/palate…Read more


Shelly C.

My son Noah was diagnosed with multiple heart defects just 3 hours after birth…Read more


Shannon K.

I found out at 27 weeks pregnant that my baby had a severe heart defect…Read more


Courtney A.

My daughter, Tessa, was born with what we were told was “a one-of-a-kind heart.”…Read more


Tiffany H.

01/23/2020, it was a Thursday afternoon, I was 20 weeks pregnant with my first child…Read more


Mallory A.

After 5 years of infertility and many failed medicines and treatments, my husband and I were finally blessed with our miracle baby on October 1, 2020…Read more


Maria V.

Karina Naomi was born on September 14, 2020, with a congenital heart defect known as L-TGA (transposition of the great arteries)…Read more


Jennifer M.

My son Waylenn went to his doc on his birthday Oct. 20 to get his 4-yr old shots…Read more


Laura G.

Our son Declan was born with a severe CHD known as hypoplastic left heart syndrome…Read more


Morgan F.

My son’s name is Truett. He is 3 months old now!…Read more


Gia M.

Gia Marie was born on March 5th, 2020, 3 weeks prematurely with Tetralogy of Fallot…Read more


Kallie L.

My son Nathan was born in June 2020 with Hypoplastic Right Heart Syndrome and several other severe heart defects…Read more


Glaina B.

live in New-Brunswick, Canada, I’m 25 years old and I am the mother of a 4 months old heart warrior…Read more


Kayla R.

My son Treyvon was diagnosed at five days old with Tricuspid Atresia, coarctation of the aorta, atrial septal defect, ventricular septal defects, and transposition of the great arteries…Read more


Valentina B.

Valentina was born on 12/21/2020…Read more


Ashley S.

This is Castiel South. He has Tetralogy of Fallot with severe pulmonary stenosis…Read more


Jolene B.

THE DAY MY LIFE CHANGED FOREVER…Read more


Diana M.

I just want to share how my CDH baby loves her WubbaNub!…Read more


Amanda K.

Gwen was diagnosed with multiple complex heart defects the day after she was born…Read more


Amber C.

Hi my name is Amber. This is my son Cason, he will be 4 months old on February 13th…Read more


Brittany D.

My story.. my lil’ princess was 1 week old…Read more


Lisa B.

June 19th: Caden (our 5-year-old) and I were having our regularly scheduled Friday sleepover…Read more


Kayla C.

Never did I think I would have a child with a heart defect, let alone two…Read more


Ali B.

Our sweet little girl Parker was born at 33 weeks at 2.5lbs…Read more


Robin A.

This is a story about baby Max. His mommy is Katie, my daughter. I’m Na (short for Nana) – the name given to me by Max’s big sister Olivia…Read more


Kassandra G.

When I was 11 weeks pregnant, I was having a threatened miscarriage…Read more


Alyssa K.

Jordan was diagnosed with Transposition of the Great Arteries at 23 weeks in utero…Read more


Katlin V.

This is Aurora. We found out at 7 months old that she has a stage 3 heart block AV completely with a low heart rate…Read more


Tenlee Grey A.

Happy heart month! My daughter was born on February 28, 2019, at the Children’s Hospital of Philadelphia…Read more


Ashley M.

Gia Marie was born on March 5th, 2020, 3 weeks prematurely with Tetralogy of Fallot…Read more


Kimberly T.

Meet Nicholas he is 9 months old and was born with Tetralogy of Fallot (TOF)…Read more


Nathan Bento P.

Nathan was born December 10th, 2018 with hypoplastic left heart syndrome…Read more


Danielle C.

Will was born with CHD known as Transposition of the Great Arteries…Read more


Courtney M.

Our son Paxton was diagnosed in October 2018 at 34 weeks with narrowing of the aorta…Read more


Courtney F.

Our daughter, Knox, was born with four heart defects…Read more


Stacey S.

At my 13 week ultrasound was when we found out our daughter, Genevieve, had a potential for a heart defect…Read more


Clement T.

During my 20-week anatomy scan the doctor noticed that Clement’s heart did not look like a normal developing heart…Read more


Melanie C.

My baby boy was born with CHD. He has several different defects…Read more


Jeanette D.

My daughter Melody Teresa was born on December 27, 2019, at Texas Children’s hospital with a prenatal diagnosis of Tetralogy of Fallot…Read more


Kayne N.

Kayne was diagnosed with Transposition of the Great Arteries 20 weeks before birth…Read more


Dana S.

My husband and I lived in Montana when our daughter was diagnosed with having congenital heart disease…Read more


Nicole P.

Presley Mae Phillips was born August 26, 2019. We unexpectedly lost her on October 26th, 2019…Read more


Kate H.

Stowe had a pretty rough start to life and we didn’t know that she had a critical congenital heart defect until she was 10 days old…Read more


Rachel E.

My son was diagnosed with HLHS when I was 23 weeks pregnant…Read more


Kayla H.

This is our little heart warrior…Read more


Maggie C.

My baby boy Connor is now 7 months old, 16+ lbs, and thriving!!…Read more


Taylor E.

I went into preterm labor at 35 weeks and Griffin Hunter Engebose was born…Read more


Britnee A.

This is Trae. He has a rare form of CHD called Congenitally Corrected Transposition of the Great Arteries…Read more


Grayson P.

Grayson was born in September of 2019 we thought he was a healthy beautiful baby boy that all changed…Read more


Kelley C.

Our son, Luke Hudson, was born on August 12, 2020. On the day we were leaving the hospital, the staff picked up on a murmur…Read more


Ellen T.

When I was 20 weeks pregnant with our son we found out he had a congenital heart defect…Read more


Patti M.

My Granddaughter, Harper Ann Webster was 7 months old when she had open-heart surgery to close a large Ventricular Septal Defect…Read more


Hayley P.

Hello. My son & rainbow baby Hezekiah (Ki for short) was born with CHD…Read more


Olivia G.

Kayn’s Journey

August 6th, 2018, the day Alex and I first found out we were going to be parents…Read more


Dolores N.

I had a totally normal pregnancy up until the end. During a check-up, it was found that Noah was in fetal distress…Read more


Ginger P.

My niece, Sarah Elizabeth, was born in 2000 with pulmonary atresia w/an intact ventricular septum…Read more


Brittany G.

This is Boston! On Monday, February 2 2021 his mommy Breanne gave birth at 34 weeks to a 3lb sweet baby boy!…Read more


Liam O.

At 17 weeks gestation, we found out our baby had a severe coarctation in which we were so heartbroken…Read more


Jameson S.

This is Jameson. He was born on February 17, 2020, with hypoplastic left heart syndrome (half a heart)…Read more


Amy G.

Our baby daughter Chloe was diagnosed with TGA at our 20-week scan…Read more


Blaine P.

I am the mom of a two-year-old little boy who has Hypoplastic Left Heart Syndrome. His name is Daniel…Read more


Heather M.

Isla was born with Digeorge Syndrome, a chromosomal condition that caused her congenital heart defects…Read more


Rachel C.

We first found out about our daughter’s heart condition at 20w gestation. We knew shortly after birth she would need heart surgery…Read more


Chelsy C.

Our warrior is Henley. She is almost 3 weeks old and has already had heart surgery…Read more


Shannon S.

We found out that our son had a rare Congenital Heart Defect in my 20 weeks ultrasound. Because of COVID, I was…Read more


Morgan B.

At our 20-week anatomy scan, we could tell something was t right. The tech kept scanning over his heart…Read more


Emily L.

My son Sonny James was born on 12/20/2020 the next night he was brought to the NICU…Read more


Chase I.

Hi there!!!! My name is Amy and I’ll be sharing Chase’s story. We found out at 20 weeks that he had DORV…Read more


Alisha R.

I became pregnant with twin boys during the pandemic in 2020. Already going through the challenges of pregnancy…Read more


Stephanie A.

My granddaughter, Hallie Kate Laytart, was diagnosed with Coarctation of the Aorta at birth…Read more


April F.

My nephew Wylie Poole was born with HLHS!! This means that the left side of his heart has no function at all…Read more


Amy W.

Hi! Chase was born with DORV. we found out at his 20-week ultrasound that he had a CHD…Read more


Carlee D.

Our son, James, was born with HLHS at the Cincinnati Children’s Hospital. He was truly a warrior…Read more


Tyler N.

This is Emmy Kate! At 17 weeks pregnant, she was diagnosed with Dextrocardia with Situs Inversus…Read more


Farynn K.

Kinsley Elliana was born with a complex heart defect. We received her diagnosis in utero…Read more


Rachel H.

My son, Caden, is two years old. He has a Congenital Heart Defect called Hypoplastic Left Heart Syndrome…Read more


Megan R.

My daughter Maya was born with what’s called Shone’s complex, which is 5 congenital heart defects…Read more


Caily S.

This is Ellowyn. She was born with a few heart defects, including truncus arteriosus…Read more


Morgan S.

My son, Colton, was born with HLHS, a rare congenital heart defect that requires…Read more