My son, Colton, was born with HLHS, a rare congenital heart defect that requires at least 3 surgeries to “repair” his heart. He had his first surgery, the Norwood, at 6 days old, and his second surgery, the Glenn at 6 months old. He spent his first 102 days of life in the CVICU at Children’s and was able to come home for 2 months in between his second surgery, where he spent another 13 days in the CVICU. Following his first surgery, he also developed a severe intestinal infection, NEC, where he battled for his life. Thankfully, God heard our prayers and guided Colton, through this nasty infection. Colton did end up needing another surgery where they removed the infected bowel, which now leaves him with also short gut syndrome where he has to rely on IV nutrition to grow. It has been a tough road but Colton is the strongest warrior I know and I am so grateful for every single day with him CHD’s are very real and more common than people know, please spread awareness!