My baby boy was born with CHD. He has several different defects. At my 20-week ultrasound we found out there were some things that weren’t formed quite right with his heart, but it was not until he was born that we could assess him properly. He was born without his left pulmonary artery, which caused him to not be able to be alive with medicine until surgery.
He had his first surgery at 2 weeks old, to have a pulmonary artery built for him. At 6 months he had a full repair surgery for his major condition, TOF, along with some minor defects. At 7 months he had an aneurysm and we ended up having to take him for emergency surgery.
He is 20 months now and as happy as can be. We are waiting on a valve replacement and a couple of other procedures.
His CHD bear WubbaNub has been through all of it with us